creators_name: Jathanna, Roopalekha PN creators_name: KS, Latha creators_name: Bhandary, PV creators_id: roopa.jathanna@manipal.edu editors_name: Kakkilaya, Srinivas type: journale datestamp: 2011-05-02 17:17:26 lastmod: 2011-05-02 17:17:26 metadata_visibility: show title: Burden and Coping in Informal Caregivers of Persons with Dementia: A Cross Sectional Study ispublished: pub subjects: OJHAS full_text_status: public keywords: Dementia; Informal caregivers; Burden; Coping strategies abstract: Caring for persons affected with dementia is associated with substantial psychological strain as evidenced by high rates of psychiatric morbidity and high levels of caregiver strain. Dementia care in developing countries will continue to be provided by immediate family members at home and is unlikely to be taken over by institutions due to socio-cultural reasons. This study aims to examine the relationship of selected factors of patients affected with dementia and their caregivers that were associated with the burden and coping of family caregivers. This is a cross sectional study of a long term project by the author (RJ), involves face-to-face interview with questionnaires with family caregivers of patients with dementia. Burden was related to patient’s behavioral problems, gender, family type and the years of care giving. Principal component analysis of Brief Cope revealed 6 major dimensions: acceptance, humor, religion, substance use, behavioral disengagement and self blame as significant coping skills. Care giving was associated with more psychological complaints and a poor quality of life both physical and psychological. Self blame, behavioral disengagement, venting & emotional support emerged as an important variable as the care giver relation differ in the kind of care giving and care giving burden. Results highlight the importance of improving the mixed coping skills in burdened caregivers. Interventions need to designed and tailored to the specific needs of caregivers. date: 2011-01-20 date_type: published publication: Online Journal of Health and Allied Sciences volume: 9 number: 4 publisher: BS Kakkilaya refereed: TRUE referencetext: 1. World Health Report 2002. Reducing Risks; Promoting Healthy Life. World Health Organization, Geneva: 2002. 2. Population of India 1901-2001, General Registrar India, National Commission on Population, Govt. of India 3. Prince MJ. The need for research on dementia in developing countries. Tropical Medicine and Health. 1997;2:993-1000 4. Shaji KS, Smitha K, Praveen LK, Prince MJ. Caregivers of people with Alzheimer’s disease: a qualitative study from the Indian 10/66 Dementia Research Network. International Journal of Geriatric Psychiatry. 2003;18:1-6 5. Grafstrom M, Fratiglioni L, Sandman P, Winlad B. Health and social consequences for relatives of demented and non-demented elderly. A population-based study, Journal of Clinical Epidemiology. 1992;45:861-870 6. Novak M, Guest C. Care givers response to Alzheimer’s Disease. International Journal of Aging and Human Development. 1989;28:67-78, 7. Pratt CC, Schmall V, Wright S, Hare J. The forgotten client: family caregivers to institutionalized dementia patients. In Aging, Health and Family, Sage, Newbury Park, California. 1987 pp. 197-215 8. Zarit SH, Whitlatch CJ. Institutional placement: phases of the transition. The Gerontologist . 1992 32: 665-.672 9. Charles SC. You want to measure coping you’re your protocol’s too long: consider the Brief COPE, International Journal of Behavioral Medicine. 1997;4(1):92-100 10. Vitaliano PP, Russo J, Carr JE, Maiuro RD, Becker J. The two ways of coping checklist: revision and psychometric properties. Multivariate Behavioral Research. 1985;20:3-6 11. Schulz R, O’Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist. 1995;35:771-91. 12. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649-55. 13. Rachael GH, Shah E. Informal care at times of change in health and mobility: a qualitative study Age and Ageing. 2006;35:261–266. citation: Jathanna, Roopalekha PN and KS, Latha and Bhandary, PV (2011) Burden and Coping in Informal Caregivers of Persons with Dementia: A Cross Sectional Study. [Journal (On-line/Unpaginated)] document_url: http://cogprints.org/7250/1/2010-4-7.pdf